We organised our third annual 12.5-mile charity walk for the Foundation for Prader-Willi Research UK (FPWR UK). 300 people joined the trek, starting at the Fletchers Arms in Denton, across the picturesque country side paying a visit to each of our other pubs along the way and finishing up, after a sun and fun filled day, with a celebration and fundraising party at the Hesketh Tavern.
The FPWR UK is a charity very close to the Almond family’s heart as it is funds research in to Prader-Willi Syndrome which Vicki’s daughter, Bella, was diagnosed with at 2 weeks old. The syndrome is very rare affecting just one in 20,000 children born in the UK. It causes a constant desire to eat food, driven by a permanent feeling of hunger and can easily lead to dangerous weight gain. This is alongside restricted growth leading to short stature, reduced muscle tone, learning difficulties and behavioural problems.
Liam, Bella’s dad, walked the entire half marathon in an 8ft (2 stone!) giraffe costume in the 26degree heat, in the hope of drumming up some more attention. And attention he did gather-the local people were shocked and delighted to see him strolling the streets of Stockport, some even pulling over and donating there and then!
Supporters gave generously through sponsorships and donations, the final fundraising came in at an incredible £13,675.
Vicki said “For the third year now we are absolutely blown away by our community’s generosity, enthusiasm and commitment to support our charity. This year we were proud to include 6 families with children with PWS within our 300 walkers. As the condition is so rare, it is so special when families affected can get together and share that peer support.
We all had a fabulous day and can’t wait for next year!”