We organised our fourth annual 12.5-mile charity walk for the Foundation for Prader-Willi Research UK
(FPWR UK). 320 people joined the trek, starting at the Fletchers Arms, across the picturesque countryside paying a visit to each of the other pubs, the Spread Eagle, the Puss in Boots and Three Bears on the way.
The blue cladded clan finished up, after a sun and fun filled day, with a celebration and fundraising party at The Hesketh.
The FPWR UK is a charity very close to the Almond family’s heart as it funds research in to
Prader-Willi Syndrome which Vicki’s daughter, Bella, was diagnosed with at 2 weeks old. The syndrome is very rare affecting just one in 20,000 children born in the UK.
It causes a constant desire to eat food, driven by a permanent feeling of hunger and can easily lead to dangerous weight gain. This is alongside restricted growth leading to short stature, reduced muscle tone, learning difficulties and behavioural problems.
Supporters gave generously through sponsorships and donations, the current fundraising is at an incredible £17,300 and this figure is still rising!
A note from Vicki; “For the fourth year now we are absolutely astounded by our community’s generosity, enthusiasm and commitment to support the charity. We are totally blown away with the amount of money raised, it really will make a difference to this small charity. This year we were proud to include 7 families with children with PWS within our 300 plus walkers. As the condition is so rare, it is so special when families affected can get together and share that peer support.
An extra special moment for us was being able to watch our little girl walk over the line herself this year, something she’s never had the strength or muscle tone for before.
We all had a fabulous day and can’t wait for next year!”