It was One Small Step for the little known charity, Foundation for Prader-Willi Research UK, but regulars and staff at our pubs walked half a marathon to raise funds for research into the rare and complex genetic disorder, Prader-Willi Syndrome.
We had nearly 200 people walking the 12.5mile walk, which almost doubles the numbers from last year.
Prader-Willi Syndrome, is present from birth and throughout life. In 95 per cent of cases PWS is not hereditary and can thus occur in any family, though the prevalence rate is thought to be as low as 1 in 22,000. People with PWS are challenged by an untreatable, insatiable appetite resulting in almost constant feelings of hunger, together with immature physical and emotional development.
Said Vicki: “It was a huge day for the Almond family and all of our pubs. The walk from the Fletchers Arms in Denton all the way to the Hesketh Tavern in Cheadle Hulme stopped off at each of our other pubs on the way…well, it would have been rude not to.”
The One Small Step “walkathons” are part of an international campaign seeking to eliminate the challenges of PWS through the advancement of research. Vicki said: “My family and I wanted to do a fundraiser and thought the best way we could host an event on a big scale was to use the facilities and resources of our five pub-carveries.”
The trek began after walkers were served breakfast at the Fletchers and included “pit stops” at the Spread Eagle in Romiley, Offerton’s Puss in Boots for lunch and the Three Bears in Hazel Grove before finishing with a celebration party in the garden at the Hesketh.
Vicki said after this year’s event: “Liam and I are were so proud to watch two hundred people walk such a long way, all because of our little girl. She touches everyone’s hearts with her big smile and continues to motivate us daily to raise money for research into this cruel condition.”
She added: “Saturday 11th July was a fantastic day with emotions running high and a fabulous atmosphere. Fundraising for Prader-Willi research in the UK is run by a handful of volunteer parents with no staff or resources. We really do need all the support we can get.”
For more information and to see some pictures from the day, please visit our Facebook page